Loie's Disease
A Book about Leukodystrophy
by
Book Cover & Preview Text
Children with leukodystrophy will teach you the most precious lessons of life if you are lucky enough to spend time with them. Children with leukodystrophy understand that the most important thing in the world is to have people who love you.
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About the Book
Leukodystrophy is a life-limiting neurological disorder that can affect both children and adults.
In an illustrated story based on her conversations with her children after their sister, Cal, was diagnosed with leukodystrophy, Maria Kefalas delivers a simple and powerful explanation from a child’s point of view that explains the workings of the brain, what a diagnosis means, and how to face the challenge as a family.
“This is a beautiful book that delivers a powerfully simple, no nonsense explanation of leukodystrophy … it reminds us that every single child needs and responds to our love and kindness.”
—Rebecca Brenner, former teacher
About the Author
AUTHOR BIO
Maria Kefalas is the co-founder of The Calliope Joy Foundation and has authored numerous books and articles. She lives in Bala Cynwyd, Pennsylvania, with her husband, three children, and dog, Brody. This is her first children’s book.
ILLUSTRATOR BIO
Lela Meunier is a student at Temple University’s Tyler School of Art. She is a teacher, artist, and illustrator based in Philadelphia, Pennsylvania.